Learn the truth.

1. Do you know anyone with Macular Degeneration or Stargardt’s Disease? – Yes I have Stargardt’s.

2. What is your view on using stem cells to treat disease? – Using your SCB method me a propnent for Stem cell treatments. I believe Stem cell treatments will be the only effective treatments for Stargardt’s.

3. Have you heard before of ACT’s “embryo-safe” technology? What are your impressions? – Yes! I think it is absolutely inspired.

4. Does the growing government support for stem cell research change your attitude toward it? – No, the change in method changes my attitude towards Stem cells. My only question is; how does one become one of the lucky 12 patients in the clinical trial?

(re-submitted with corrections)

I know someone who has Macular Degeneration and someone who has Stargardt’s Disease. I have seen how these diseases negatively affect one’ quality of life. I look forward to the day when stem cells are used to treat these and other diseases. In fact, as a stroke victim myself, I am hopeful that stem cell treatments will soon be available to help me overcome the disabilities caused by the stroke. I am aware of ACT’s before of ACT’s “embryo-safe” technology and think this is a wonderful development. I believe that most people still associate emryonic stem cell research and therapy potential with the destruction of the embryo.

found your site on del.icio.us today and really liked it.. i bookmarked it and will be back to check it out some more later

1. Yes, I was just diagnosed with an adult form of Stargardt’s, known as fundus flavimaculatus at the age of 58 (nothing juvenile about that!). My vision is quite good at the moment. I was most disappointed in that I’m no longer a candidate for cataract surgery.

2. I’m all in favor of using stem cells to treat disease.

3. I was not aware of ACT’s embryo-safe technology, but I had no ethical issues with stem cell research.

4. I thought the previous generation of politicians was foolish to ban stem cell research. I definitely want to be kept up-to-date on the progress of the clinical trials. I know that my eyesight won’t improve, but would love for it not to get any worse. At least I’m told that it is slow progressing so I have time for the cure!

it was very interesting to read http://www.advancedcellpatients.com
I want to quote your post in my blog. It can?
And you et an account on Twitter?

I just read an article on Lifenews.com that said Geron was just granted approval by the FDA to begin Human clinical trials using ES cells. ACT appears to claim the same thing or am I missing something?

While I don’t know anyone with Stargardt’s, my 13-year-old daughter has panuveitis, which has resulted in complete vision loss in one eye. We are very hopeful that stem cell research will restore her vision some day. I just happened to see an article about the FDA’s recent approval for ACT’s trial, and then came to this site. After reading the article and checking out the ACT website, I’m inspired by the company’s work and hopeful that they will consider a trial for those with uveitis, too.

Kate, thank you for your input. Please feel free to join us on our linkedIN group: http://www.linkedin.com/groups?mostPopular=&gid=3260687 and start a topic about uveitis.

Jim, this is true and we are excited! However, ACT is working on eye disease and Geron is working on the spine, we cover this topic here: http://www.advancedcellpatients.com/2010-08-hopes-confirmed-with-science-geron-tackles-spinal-injury-act-congratulates.html

Yes, you can quote our blog, also, we offer RSS feeds. Here is our twitter account: https://twitter.com/ACTCbiotech

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Both I and my brother have Stargardt’s. I began to lose my vision at 18 and at 47 have had no central vision for over 25 years but maintain peripheral. My brother, a couple of years younger, is about the same.

He has followed developments through this site for many months. This is my first visit. We are looking forward to the start of the clinical trials.

What would the Company’s view be to the basic question of how long is there to wait before treatment becomes available to such as us in the UK? In our forties, time is not on our side as to go out and have a knock up on a tennis court is still something we would love to do. Should we be hopeful or realistic?

I will use your advice from now on. Jaap

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My 81 year old mother has Macular Degeneration. She has managed to live alone up until now, but it’s getting more difficult due to severe vision loss. She can’t drive; has difficulty doing the simplest daily tasks.
Is it realistic to hope that there may be a trial or, better still, a cure in her lifetime?
What can I do to support stem cell research in light of recent federal judicial decision?

I know somebody with retinopathy of prematurity (ROP). With retinal detachments in both eyes. If these clinical trials seem to be the answer for Macular Degeneration, is there a probability that it can be beneficial for someone with ROP as well? I believe stem cell research is one of the greatest discoveries ever. It well could be the answer to many things. I think ACT’s “embryo safe technology”, is an excellent way to go about doing cell reasearch. I’m so excited of what the future could hold for us with this research. I will keep posted.

I have to hear exactly what Debora can do about that

Beau

I’ve been a fan of this blog for a long time, keep it up.

How long have you been carrying this out?

Great writing! Maybe you could do a follow up to this topic!!!

Jon